Hello, I am a 34 year old woman who was diagnosed with ALS a year and a half ago. I have been on hospice for 7 months. ALS is 100% fatal and there is no cure. Its hard to get an exact prognosis with my illness because everyone progresses at a different rate. I am fully paralyzed, have a feeding tube, and rely on a non invasive ventilator because I can no longer breathe on my own.
I am typing this using my Tobii eye gaze device to type this just by looking at the screen and selecting things with my eye.
Ask me anything, but please keep it respectful.
EDIT - I really appreciate all of these questions. I will answer more tomorrow!
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